Thursday Thankfulness

I am completely exhausted, but I couldn't let another Thursday go by without posting! My thankfulness today will have to be a little short & sweet:

I am thankful that Gus's EEG results were all perfectly normal, meaning he is most likely not having seizures at this point. The neuro told me, which I was somehow unaware of, that about 10% of kids on the spectrum also have issues with seizures. Always something to learn! And something I will have to keep an eye on. The most common times for them to surface are between ages 4-6 and then around the teenage years. We are to watch out for sudden changes of behavior that come on suddenly, last for only a few minutes and then taper off; sudden extended pauses, and marked academic regression that might signify nighttime seizures affecting school work. The doctor also said that Gus's tics may come back, but I'm not overly worried about that. Otherwise, Gus is doing well and we don't need to see the man until next year, which he should be grateful for, because after the hour and a half wait, I was not the warmest parent he's ever talked to. If you're familiar with the term "ice grill" you can imagine the look that greeted him when he finally deigned to stop into the examining room for a whole 15 minutes. But I won't dwell...

I am thankful that we made it home in one piece. Perhaps it is the excessive amount of rain that's got me so exhausted, or maybe the 2 hours spent at the neurologist, or the fact that I was up at 4:45 for a 5 am tutoring shift, but my eyes actually shut on me twice on the ride home. There are a mailbox, a guard rail, and a bouncy 8-year-old Aspergian who are also thankful that I caught myself drifting.

I am thankful that we got a whole day and a half of sunshine mixed into all these past days of gloom. I wonder if there are Dementors breeding in upstate NY?

And since I missed last week, I am thankful that Harry Potter and the Half Blood Prince will be out in just 28 days. I won't bore you with any fangurliness beyond that!

What are you thankful for today? Have a great weekend!



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Gus's EEG

Gus went for an EEG (electroencephalogram) this morning. This test takes a basic measure of brainwaves and activity over a short period of time. It is often used to check for seizures, but can also give a broad picture of which parts of the brain are active under different conditions, can show which side of the brain is more dominant, or can provide other clues as to what's going on in the patient's noggin. When we went to the neurologist a couple of weeks ago, one of the first questions he asked was if Gus had ever had one. It was never done because our past specialists didn't think he's be able to stay still long enough to get a good reading. He did quite well this morning, despite a good deal of anxiety about wires being attached to his head.

The Preparation
I've learned the hard way that springing anything on a kid (particularly one on the autism spectrum) is a bad idea. But I don't always get my timing right - I told Gus last night instead of early this morning. He woke up a little nervous about the test. I told him that he would have some little wires placed on his head to check out his brain waves, and I attempted to make it sound as fun and cool as possible. He slept fine, but this morning the first thing out of his mouth was that he had a bad dream about wires in his head. He had questions and I answered them: no, it wouldn't hurt at all; all he had to do was stay still for a little while; no, there would be no zapping of his brain. The procedure was done in the doctor's office, which helped because he was familiar with the place. By the time we got there I had him pretty well distracted by talking to him about U.S. presidents; we spent some time trying to figure out who the 36th president was by counting backwards. When the usual distraction attempts fail, going to the subject of an Asperger's child's fixations can be a life saver.

The Test
The office was quiet and virtually empty at the time we arrived. When we were called, a technician, a lovely and calm older woman brought us in and explained to Gus what she was going to do. I thought he'd be able to sit in my lap, but he needed to lay down on a table, which he didn't much like, but complied. She took a bunch of little electrodes - mini half-castanets attached to a rainbow of wires - and stuck them to his head with a thick conductive cream. Then she placed 2 on his collarbone to monitor his pulse. I sat next to him to keep him calm and also to keep him from plucking the electrodes off (he kept wanting to touch his head and several times said he felt like Frankenstein). There was a portion of the test involving a strobe light that he was supposed to keep his eyes closed for. Aside from opening his eyes, he handled it fine, but I found it interesting that even with closed eyes, as the strobe sped up, he became more agitated. The next part of the test required him to do deep breathing for 3 minutes - he aced that section. The remainder of the time, we looked at a book about reptiles and amphibians and talked some more about the 36th president. (The technician went on Wikipedia and found the answer for us). All in all, it was harmless and mellow. When it was time to take the electrodes off, he got anxious again, this time just eager to be rid of them.

And now, Gus is perfectly fine and happy, as if he'd never had a Frankenstein moment today. While I doubt we'll find out anything spectacular from the test, I'm curious to see the results.

Has your child had to do an EEG test? If so, how did you prepare, and how did the test go?