Showing posts with label sensory integration disorder. Show all posts
Showing posts with label sensory integration disorder. Show all posts

Monday, September 28, 2009

Movie Review: Cloudy with a Chance of Meatballs

Asperger's, autism, jokes, movies, noise sensitivity, reviews, sensory friendly films, sensory integration disorder, Cloudy with a Chance of Meatballs

It was only a few months ago that we started taking Gus to the AMC Sensory Friendly films geared toward kids with Sensory Integration Disorder. This past weekend, the rainy weather nudged us to try something new for the kids: a 3D movie without the sound modifications. I was a little nervous, especially at $42 for the 4 of us (Remember when a movie was a cheap family outing?) that we'd last 15 minutes and would have to leave because of the noise or the images or just because we were having an 'off' day. Each of the kids represented separate concerns. Aside from the sensory issues, we worried that Gus might not be able to sit still, and that both of them would be scared, and not just by giant food flying out of the screen. Fortunately, they both sat through the film like champs and loved it!

Cloudy with a Chance of Meatballs tells the story of a genius, misfit inventor named Flint Lockwood. His only friend is his pet monkey, Steve (voiced by Neil Patrick Harris). The only person who understands Flint is his mother; to everyone else on the sardine-fishing-industry island where he lives, he's a huge nuisance with his weird inventions. Within the first 2 minutes of the movie, I was hooked. Could I possibly relate to the kid onscreen any more than I did? Not likely. Gus was completely still and focused as well. (I wonder if he felt the same connection to the main character.) After his mother (who is only in the film during the first few minutes) gives him his first real lab coat, Flint wants to help his town and gain acceptance with his inventions, the latest which transforms water into food so that the people can finally vary their sardine diets. Things start out well enough, but due to greed and overindulgence, go horribly wrong.

The film quickly went from sadly moving to side-splitting funny. It was very light on really crass humor, which I appreciated. The little inside jokes were great as well, like Flint using the old Simon electronic game as the control panel to his underground lab. The 2 leads, Bill Hader and Anna Faris, were perfect, and some of the supporting performances were excellent as well. My favorites were Mr. T. as the town cop, who was more versatile in the role than I ever would have given him credit for, and James Caan as Flint's unibrowed, laconic dad. One scene with Tim, Flint's father, the town tackle-shop owner, when he tries to send an email was especially hilarious.

There was a little bit of awkward romance between Flint and aspiring weather reporter, Sam, but not so much as to make it inappropriate for a six-year-old. There were some mildly scary images, but the one that got MM worried the most when one character experienced an anaphylactic peanut allergy and swelled up like Aunt Marge in the 3rd Harry Potter film. It upset her because both DH and his dad have peanut allergies, but she didn't wake up with any nightmares, so I think we explained the situation well enough. The noise from the action sequences was very tolerable, and the 3D effects didn't seem to bother the children at all. The only time Gus got distracted from the movie was when he got thirsty and I ran out for water and popcorn.

Overall, I'd rate Cloudy with a Chance of Meatballs 4 out of 4 stars. To quote Gus, "They hit a home run with that one!" Go see it!

*poster image borrowed according to fair use from Columbia Pictures


Monday, June 29, 2009

It's Duck Season...No, It's Wabbit Season...No, It's Tick Season

Asperger's, autism, ticks, tick removal, camping, insect repellent, lyme, mistakes, nature, parenting, safety, sensory integration disorder, sensory issues, summer, tips
What's more fun than a barrel of rage-infected monkeys? Trying to remove a very large, very gross, very embedded, and very engorged tick from your very panicky autistic child. And for extra laughs, try doing it in a supermarket parking lot.

Yesterday, my poor Gus found a huge tick behind his right ear. He seemed to feel it suddenly and started scratching at it as we were getting in the car to leave the supermarket. One look told me that it had been there at least since the day before, and that's really the only time he could have gotten it. Of course, I panicked because, well: supermarket parking lot, kid picking at nasty bug, twenty minute ride home...take your pick of bad situational elements.

After dragging the kids through the parking lot trying to find someone with tweezers, I finally went back into the supermarket and a lovely clerk gave me a pair. I took Gus outside (with MM in tow, bless her little heart, she was so good about it) and with him screaming bloody murder, I managed to rip the thing apart and leave the head embedded. In other words, exactly what I was not supposed to do. It's kind of hard to remember all the rules in the midst of a panic, especially when you don't know the rules to begin with. I sort of half knew them, but with him twisting and writhing (and the nice people in the parking lot staring like I was ripping his head off instead of the bug's) just as I grabbed the head, Gus jerked and...pop, squish, off came the body without the head.

The good news is that the tiny deer ticks are usually the lyme carriers, but this isn't set in stone, so we will still watch for the signs of lyme: fever, fatigue, rash (can appear as long as 6-8 weeks from the time of the bite), etc.

From what I've learned, the most important thing is to not squeeze the tick because that makes it inject more (potentially infected) muck into the site. To remove a tick, if tweezers are the only thing available (preferably splinter tweezers), you've got to get the head and pull back gently to avoid breaking the tick and getting the head stuck in the skin, which can lead to infection. The head itself won't transmit lyme, but infection is still not really desirable. There are apparently devices, available in pet stores, for removing ticks that are supposed to be more effective than tweezers:

Commercially available tick-removal devices include the Sawyer Tick Pliers (B&A Products, Bunch, Okla.), Pro-Tick Remedy (SCS Limited, Stony Point, N.Y.) and Ticked Off (Ticked Off Inc., Dover, N.H.)*
From American Family Physician

Methods to avoid include hot matches, vaseline, clear nail polish or nail polish remover to get the tick to dislodge. Those tend to make the little bloodsuckers dig in deeper and, you guessed it, squirt more nasty fluids.

Two preventative measures to take against these critters are to use insect repellent regularly, which can be difficult with a child who has sensory defensiveness to smells, and to perform tick checks. I've tried several formulas for Gus that he has absolutely hated. Aside from the odors, he doesn't like being sprayed with things. I'm next going to try a natural lemon and eucalyptus repellent (doesn't have a very strong smell). Bed, Bath and Beyond used to sell insect repellent bracelets (they looked like small coils) but I found those to be ineffective, and the kids would just play with them and take them off anyway. There are wipes to use for kids who dislike sprays.

During this time of year, especially if you live in a grassy, woody area where ticks are prevalent,you should check for ticks carefully every day. Spending a lot of time outdoors isn't a requirement for getting a tick - MM has had them jump her when she was just passing by a bush as soon as we left our house. (I caught that little bugger before he could attach himself.) She hadn't even made it to the grass and was still on the concrete path. We usually check every night, but it's not hard to miss something that small - do your best and be sure to check between toes, hairline, behind the ears, armpits and groin area.

Gus is fine now and I'm fairly certain we were able to get the rest of the tick dislodged from his skin. Be careful out there - the bugs seems to be particularly numerous this year. For us, we're going to try one of those tick removing devices very soon. This happened just in time for us to go camping! Keep your fingers crossed for us!

Wednesday, May 27, 2009

Time Article on ADHD

ADHD, Asperger's, autism, brain development, Least Restrictive Environment, medication, Pokemon, school, sensory issues, sensory integration disorder, studies, Time
Thanks to a Tweet by Dana Jonson, I saw this Time article entitled Kids with ADHD May Learn Better by Fidgeting. In essence, the article highlights a small but thorough study done by Mark Rapport that demonstrates when kids with ADHD are fidgeting, their brains are stimulated in a similar way as with stimulant medications. It seems that if they are allowed to fidget (obviously not to the point of climbing walls) they may actually focus better (even if that seems backwards to a teacher whose brain doesn't work the same way).

I love coming across studies like this because they validate what I've always known about Gus. From the time he was born, two things were very evident: he was extremely alert and taking everything in, and he was never still. Before he could walk, his little legs were always going. I remember trying to teach him to count when he was about 18 months old. Whenever I would ask him something or tell him something, he'd always run to the opposite end of our apartment and then come back with a response. Clearly, this was his way of processing information. So, this day when I worked on counting with him, I took a bunch of apples to the living room and gave them to him, one at a time. Each time he would run and put the apple in the kitchen and we counted up as he returned for the next one. He learned many things doing laps around our apartment.

One of the things I appreciate about his current school program is that when he needs to fidget or move around, he can communicate that to his teacher and be allowed to do so. Before coming into class, he might hop through the hall like a kangaroo to his seat. Then he can start his morning assignment. The movement seems to help a lot.

ADHD is only part of Gus's trouble with focus, because he also has a bunch of sensory integration issues, but ADHD is also the one that we've been advised on occasion to try to medicate. Maybe this study will bring about a shift away from medication and toward giving ADHD kids a little more freedom so their minds can work the way they're wired to. And maybe 'Least Restrictive Environment' might take on a more literal meaning.

And maybe now I won't feel so bad when I don't stop Gus from running the length of the house. He's just stimulating his brain!



*image from cksinfo.com

Thursday, May 7, 2009

Thursday Thankfulness and A New Layout

Asperger's, autism, birthday, family, friends, sensory integration disorder, thankfulness, toy recommendations
Hello all! Notice anything new? I've been toying with my layout this morning - what do you think?

Today I am thankful for:
  1. Three Column Blogger for a wonderfully easy tutorial on adding a third column to a Blogger blog. I'm definitely a DIY type of person so I was thrilled that I could do this on my own. I'm hoping to add in some tabbed pages as well for blogrolls, just to keep things tidy. I'm feeling quite accomplished this morning!
  2. I am thankful for being so slow to throw things out. This morning, hidden in the invoice from my last tea order, I found a sample of a tea blossom from Adagio teas. It's whole leaf tea wrapped around a little flower. Aside from being quite good, I can't express the entertainment value of one of those things! It had to steep for 5 minutes; BOTH my kids stood still for at least 3 of those minutes watching it unfold. Completely mesmerizing. I may order some just for those days when everyone is bouncing off the walls! Conversely, I am thankful that we have the bulk dumpster this week because I got rid of some things I've been dying to throw out. It may take me a while, but getting rid of clutter is sure liberating.
  3. I am thankful for the creativity and insight of Gus & MM's aunts and uncles (even if they don't realize just how creative and insightful they are). I almost never give very useful guidance as to what to get the kids for their birthdays or holidays, etc., yet our extended family members always come up with the most awesome things. Some of the big hits lately have been: an anatomy game called Skeletons in the Closet and a 14' jump rope. Why were these great gifts? Well, Aspies tend to be great learners and fond of facts. So educational games or books often go over well. Uncle C, who gave the kids the Skeletons game, has also hit home runs with animal encyclopedias, a globe, and a book about the Way Things Work. The jump rope is just plain fun, but also good for developing coordination and generally getting in some exercise. Jumping also provides sensory input for those kids who need it. So, my sister gets props for that one!
What toys or games are your favorites for kids on the spectrum?

Thursday, April 23, 2009

Thursday Thankfulness and Tomato Plant Update

ADHD, Asperger's, autism, family, homework, IEP, nature, sensory integration disorder, spring, thankfulness, childrens theater, gardening, Bright Hub
I can't believe it's already Thursday! As the weather gets warmer, time seems to speed up - why is that? Anyway, on to thankfulness!

Today I am thankful for:

  1. New furniture that my in-laws have so generously given us. Gus is particularly fond of the new club chairs that he can curl up in and get lots of sensory input apparently. Hopefully, the arms of the chair are strong enough to withstand his affection. The new dining table is large enough that I can sit right next to him during homework without feeling squished. The proximity is good for him; the space is good for me. Win-win situation all around.
  2. I am thankful that my kids are so environmentally conscious! MM wanted to do a neighborhood clean-up for Earth Day, so we got our gloves and bags and cleaned up the playground...in the rain...massive allergy attack followed.... But it was well worth it! Nature seems to be very soothing to many kids on the autism spectrum or with ADHD. I recently published an article at Bright Hub about a study that showed how a 20 minute nature walk increased the ability to focus. So, if protecting this precious resource has the added effect of making homework easier, I'll do it, even if it means having my head feeling like a balloon.
  3. I am thankful that tomorrow is Friday and it's supposed to be a beautiful day. If it dries out enough I might be able to breathe! The down side of warm weather is that Gus's allergies and eczema seem to be causing more sensory-seeking than normal. But I think, like me, he'll take it over being cooped up in cold weather. We're just going to have to stock up on allergy medication!
  4. And a bonus since I seem to have missed last Thursday: I am thankful that both my kids got stellar report cards and Gus is finally showing some progress in his IEP goals! It was getting a little depressing seeing the No-Progress marks. They have gotten the High School Musical 3 DVD as a reward and we'll be taking them to see a children's theater performance of Robin Hood over the weekend.
Oh! And the tomato plant seems to be rallying slowly but surely! The second shoot is greener and seems to be growing a little. So, I'm grateful for that too! What are you thankful for today? Please share in a comment!

Sunday, April 5, 2009

AMC’s Sensory Friendly Films and Monsters vs. Aliens

Asperger's, autism, crowds, noise sensitivity, outings, sensory integration disorder, sensory issues, movie reviews, sensory friendly films, Monsters vs Aliens, Autism Society of America, AMC theaters

Image borrowed according to fair use from Paramount Pictures

A while back it came to my attention that some theaters offered what they called sensory friendly films, but at the time I didn't pay much attention to it. We've only taken our kids to the movies very rarely, mostly because there aren't that many movies we've been interested for them to see. But Monsters vs. Aliens looked a little too good to pass up. We decided to try to take them, but we were concerned about loud explosions bothering both kids, not just Gus. They seemed so excited to see the movie that I decided to do a little research.

It turns out that AMC Theaters partnered with the Autism Society of America to offer these sensory friendly films for kids on the autism spectrum. The films are shown at certain times of the month at select participating theaters. If there isn't a participating theater nearby, you can contact AMC – they might try to change that. The nearest theater to us was about an hour and a half away, near my sister, so we made a day of it. We packed the kids up early in the morning, went out for a big breakfast, and then met my sister and nephew for lunch after the movie.

So modifications did the theater offer? We got lucky that we called for the schedule when we did because this theater offers the accommodations the first Saturday of every month at the first showing. This is beneficial for two reasons: no crowds and matinee rates (we always prefer to pay matinee rates in case Gus doesn't make it through the entire movie). Once the movie started, the lights went down, but not to total darkness. And the best part - which made the movie more enjoyable even for me – the sound was turned down. It was great! The movie was not shown in 3D, which I was grateful for because I was worried about it being too overwhelming for Gus. He got a little fidgety, but not to the extent that he wanted to leave; he just needed to move. No one complained about his movement or when he made comments to the screen. The last time he watched an entire movie in the theater was probably when we went to see Curious George 3 years ago. It was a very nice time.

Was Monsters vs. Aliens worth the 3 hours round trip that we spent in the car? Totally worth it! I've come to have a high level of trust in Dreamworks productions. It was exciting and fun for both kids and parents (there were some hilarious pop culture references) without being crude or obnoxious. In other words, it was just our speed. I highly recommend it!

Have you experienced any sensory friendly films? If so, how did you enjoy it? If not, would you be interested in trying one out?



Tuesday, March 31, 2009

Where Does Quirkiness End and the Spectrum Begin?

Asperger's, autism, obsessions, school, sensory integration disorder, sensory issues, special needs, quirks, ADHD, stimming, difference

Last summer I read a book called Kids, Parents and Power Struggles by Mary Sheedy Kurcinka. While I don't typically read a lot of parenting books, this one stuck with me. Kurcinka talks a bit about temperament and personality types, and what I found most interesting was that some of the extreme manifestations of different types of behavior came very close to mild manifestations of behavior that you might see in a child on the minor end of the autism spectrum. For example, some traits that she discusses in her book are persistence, sensitivity and activity. There's a scale to measure if your child exhibits these traits at a high level or a low level. I remember reading and thinking that there seemed to be a pretty thin line between a highly persistent child and one on the spectrum who might be mildly obsessive. From her description of the sensitivity trait, I wondered where the separation was between a highly sensitive child and a child with mild Sensory Integration Disorder. It occurs to me that these distinctions are purely subjective. I have to wonder if this subjectivity, coupled with a culture that strikes me as obsessed with conformity and sameness, might be a factor in what often appears to be a sudden rise in autism diagnoses.

Years ago when I was in elementary school, I got straight A's, but I rarely paid attention, I often daydreamed, I sometimes got out of my seat for no good reason (one spring I used to sit on top of my desk trying to sun-bleach my hair), and I was often disruptive but not overly active. If I were the same student today, I might be diagnosed with ADD, but back then no one felt the need to classify me as anything. I was just a really smart kid who was probably bored and talked a lot. When Gus was about 18 months old, I noticed that he always seemed to isolate himself from the other kids in his daycare class, but being that I had a deep appreciation for solitude and little experience with 'typical' behavior for a child his age, I wasn't inclined to think of his behavior as problematic. My bigger issue was with his teachers who never seemed to be aware that he was at the opposite end of the play yard all alone.

The more I learn about the autism spectrum, the more similarities I notice between my son and myself, the more I question the validity of some of the things that have been labeled as 'dysfunctional.' I rock side-to-side; if Gus did that he'd be stimming. My friend had a lot to say and a doctor asked her if she had ADHD. Why couldn't it just be a simple case of her having a lot to get off her chest? When did every little difference become such a big issue?

I'm not suggesting that individuals on the autism spectrum don't need extra support because often they do. What they don't need is the stigma of being damaged in some way because of their differences. Maybe instead of trying to force these individuals to perform in a way that is unnatural for them, perhaps the world needs to do a little adapting to the fact that we are not all carbon copies of each other, nor should we be.



Tuesday, March 17, 2009

Battle of the Bedroom (or When Sensory Issues Keep You Awake)

Asperger's, autism, siblings, sleep, sensory issues, sensory integration disorder, hearing, humor
Welcome, sports fans, to the 395,687,630 face-off between Gus and Andrea in a battle royale for the coveted Good Night's Sleep trophy!

In the red corner, Gus weighs in with several weeks of good sleep and a four day weekend, giving him the advantage over his mom. His weaknesses will be a sudden recurrence of his fear of the dark and his sensory issues, like supersonic hearing. If he wakes up in the middle of the night, he will have a very hard time getting back to sleep, especially if he can't control his leg-shaking Whispering Scritch power, which has special effectiveness against Andrea's hypersensitive ears. Will he be able to hold it together? Also on the red team is MM, who has the power to talk anyone into complete madness. A dangerous opponent, especially in the pre-dawn hours.

In the blue corner we have Andrea, chronically sleep deprived, running out of patience and still recovering from yesterday's crushing defeat by MM who woke Andrea at 4:30 a.m. But don't count Andrea out yet, folks! She still has the ability to transform into Crazy Cranky Mom when awoken, with her Whispering Menace ability that can instill pure terror in any school aged child unfortunate enough to be the one to wake her. She may be able to use Gus's Whispering Scritch against him, and if he's not careful she will further transform into Psycho Mom. The only one who can prevent Psycho Mom from raining Armageddon down on the planet is her blue partner, DH. While he is perfectly capable of sleeping through the Armageddon, he is susceptible to her kicking him out of bed. Who will triumph between these two fearsome foes? Stay tuned!

Round 1
Gus convinces Andrea to let him sleep in the extra bed in the blue room for the night because he's afraid of monsters. Pulling out his Pitiful Look ability, he quickly subdues Andrea, and she gives in. Gus gets to bed with no problems and sleeps through the blue team going to bed a few hours later. Although Gus was ahead in points at the beginning of the round, Andrea's Stealth Mode balances the score.

Round 2
Gus suddenly wakes up screaming and flies into the bathroom, shocking Andrea out of a peaceful snooze at 1 o'clock. She controls her transformation and kicks DH awake to get Gus back in bed. Point to Andrea. But when Gus gets back in bed, the leg-shaking kicks in. Whispering Scritch hits Andrea hard and fast! She transforms - Crazy Cranky Mom is on the loose, and she let's go with Whispering Menace - the mom ability to scream and whisper at the same time.

"Be still and go to sleep or you are going back to your own room."

And Gus is silenced! The round goes to the blue team!

Round 3
"What was that? I heard the door!" Gus is still awake at 2 a.m. and Crazy Cranky Mom is done in; the prior night's defeat takes its toll. She grows into a 20 foot, green hulking beast (at least in her own mind - in reality , she's still under 5 1/2 feet tall and brown-skinned) - Psycho Mom has entered the building! But she's still hanging onto her self-control.

"That wasn't the door. Go back to sleep."

Gus is persistent - he knows he's got her on the ropes now. "What was it?" And just for a little added zing, he throws in a Whiny Voice.

But wait! Psycho Mom digs deep and finds some inner reserve of strength! "It's the roof settling. Go. Back. To. Sleep."

In a last desperate attempt, Gus reverts to Whispering Scritch and the leg starts shaking again. Psycho Mom is undone.

"You either be still and go to sleep or go back to your own bed!" Of course her shriek never raises above the level of intimate conversation. But the menace in her voice is so terrible, Gus throws the cover over his head and lies frozen, or at least quiets down enough for Psycho Mom to go back to sleep. Round to the blue team.

Round 3
The red team is in bad shape, so they pull out their secret weapon: the alarm clock. It goes off at 5:30; DH doesn't move. There is no world destruction requiring his immediate attention. MM strikes. She very noisily goes to the bathroom and then comes into the blue team's corner, where Gus is still KO'd. With her most powerful, pitiful whine, she moans, "Mooommmm-meeeeee! I'm lonely over there! Everyone's over heeeeeere and I'm the only one over there all by myselllllllf!" Psycho Mom has lost all her fight and shrinks back (not literally, since she never really grew in size) into her weaker Andrea form. With a whimper she gives in, kicks DH out of the bed and let's MM climb in. MM, pressing the advantage, accepting nothing less than a complete victory, starts talking loudly. And the red team takes it - Knock Out!

Andrea grumbles about running away to Chile.



P.S. I can either make myself laugh or lay down and cry. Choosing to laugh it off today. :-) Have you ever had a really bad night that you were able to laugh about the next day? Share your story!!